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The Encephalitis Podcast is brought to you by Encephalitis International and covers everything to do surrounding inflammation of the brain. Interviews with neurologists, psychiatrists, survivors and in-depth looks at different aspects of encephalitis. For more information about encephalitis, visit www.encephalitis.info
Episodes
Wednesday Mar 05, 2025
Wednesday Mar 05, 2025
In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane.
Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to complete vision loss from high intracranial pressure.
Diane discusses her lived experience, reintegration into education and the importance of empowerment when going through recovery after encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
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Wednesday Feb 26, 2025
Wednesday Feb 26, 2025
In this podcast, Prav Prathapan from Encephalitis International is joined by Dr Gareth Lipunga, from Malawi. They will be talking about the challenges that low to middle income countries (LMIC) face when it comes to encephalitis. Dr Lipunga is a medical doctor trained at the University of Malawi's College of Medicine with a postgraduate MSC in Integrated Immunology from the University of Oxford.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
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LinkedIn: https://www.linkedin.com/company/encephalitisinternational
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Wednesday Feb 19, 2025
Wednesday Feb 19, 2025
In this World Encephalitis Day special, Dr Ava Easton is joined by Doctor Tarun Dua, head of the Brain Health Unit at the World Health Organization (WHO). In exciting news for World Encephalitis Day 2025, the World Health Organization are releasing a technical brief on encephalitis. Dr Dua is here to discuss this and a bit more on the work of the World Health Organization. Useful Link - the WHO Intersectoral Global Action Plan (IGAP) on epilepsy and other neurological disorders - https://www.who.int/publications/i/item/9789240076624
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Thursday Feb 06, 2025
Thursday Feb 06, 2025
We are delighted to welcome Bethany Facer and Dr Brendan Sargent to The Encephalitis Podcast. Beth and Brendan talk to host Prav Prathapan about recent research on the neurological effects of Covid-19, including cognitive deficits and long-term effects, and the potential implications for other diseases.
Beth and Brendan also discussed the Covid-19 Clinical Neuroscience Study – a £2.3 million research study looking at the acute neurological and neuropsychiatric complications of Covid-19. This podcast also discusses the future of the Covid-19 Clinical Neuroscience Study, the potential of its data to contribute to understanding cognitive disturbances, and the importance of individualised care and support for those affected by the neurological effects of COVID-19. Links to papers: Posthospitalization COVID-19 cognitive deficits at 1 year are global and associated with elevated brain injury markers and gray matter volume reduction | Nature Medicine Cognitive domains affected post‐COVID‐19; a systematic review and meta‐analysis - Fanshawe - 2025 - European Journal of Neurology - Wiley Online Library
Bethany Facer is a neuroimaging PhD student at the University of Liverpool, focusing on people with newly diagnosed Parkinson’s disease. Bethany is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study and has previously worked on the DexEnceph trial assessing imaging changes in HSV encephalitis. An avid science communicator, she has presented at the Cheltenham Science Festival and has hosted and organised the annual Liverpool Neuroscience Conference.
Brendan Sargent is a junior doctor and clinical research fellow with the Autoimmune Psychosis Group at the University of Oxford. He is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study consortium and has worked with the Infection Neuroscience Lab in Liverpool on the cognitive impacts of COVID-19 illness. He is interested in cognition, neuroimaging and neuroinflammation. For more information about the COVID-CNS study, visit https://www.liverpool.ac.uk/covid-cli...
f you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Wednesday Jan 22, 2025
Wednesday Jan 22, 2025
Please note that this episode was recorded in November 2023.
In this episode of The Encephalitis Podcast, Dr Ava Easton is joined by Dr James Sejvar for a discussion around climate change, and how it's affecting our risk for deadly infectious diseases, such as West Nile encephalitis or Japanese encephalitis.
Dr Sejvar is a Neuroepidemiologist at the University of Pittsburgh and, University of Pittsburgh Medical Center, USA. At the time of the podcast, he led the Neuroepidemiology Unit at CDC’s Divisions of High-Consequence Pathogens and Pathology where his work focused on epidemiology, pathogenesis, clinical features, and outcomes of infections of the nervous system work which took him all over the world.
He investigated the West Nile virus in the United States, Ebola in Central Africa, Zika in South America, and of course, COVID-19. Dr Sejvar is also a member of the Encephalitis International Scientific Advisory Panel.
This podcast was recorded November 2023 - we have updated information and insights on these infectious diseases to come in April 2025. WATCH this space!
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Thursday Dec 19, 2024
Thursday Dec 19, 2024
One of our Team Encephalitis volunteers, Nicole, talks to Senior Medical Writer, Praveen, about her lived experience of encephalitis. Nicole was diagnosed with Anti-DPPX receptor encephalitis when she was 20 years old while she was at University. This lead to her needing to abandon her studies to recover. Luckily, Nicole is recovering well and is about to start the final semester of her course just two years later.
Follow Encephalitis International:
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Thursday Nov 07, 2024
Thursday Nov 07, 2024
In this episode, Dr Ava Easton (CEO of Encephalitis International) is joined by Professor Jonathan Evans - a distinguished expert in clinical neuropsychology at the university of Glasgow. Professor Jon Evans discusses the world of memory and its intersection with encephalitis including the difference between long term, short term memory and false memory, how it's referred to in the medical world and any available support aids.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/
Our support groups are listed here https://www.encephalitis.info/online-support-meetings
If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational/
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational/
Wednesday Sep 04, 2024
Wednesday Sep 04, 2024
Dr Ava Easton, CEO of Encephalitis International interviews the director of the documentary Shot in the Arm, Scott Hamilton Kennedy . Talking about vaccine hesitancy and misinformation. Find more about the film here www.shotinthearm.com and for more information about vaccine preventable forms of encephalitis please visit www.encephalitis.info/vaccine-preventable-encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/
Our support groups are listed here https://www.encephalitis.info/online-support-meetings
If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational/
X: https://twitter.com/encephalitis
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational/
Wednesday Aug 14, 2024
Wednesday Aug 14, 2024
Dr Ava Easton was joined by Professor Michael Wilson from the Centre of Encephalitis and Meningitis at UCSF to talk about metagenomics and encephalitis.
For more information about Professor Wilson's work please visit https://encephalitis.ucsf.edu/
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/
Our support groups are listed here https://www.encephalitis.info/online-support-meetings
If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational/
X: https://twitter.com/encephalitis
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational/
Wednesday Aug 14, 2024
Wednesday Aug 14, 2024
TRIGGER WARNING: In this podcast episode, Dr Ava Easton CEO Encephalitis International, talks with Prof Arun Venkatesan about the difficult topic of death from encephalitis. This is something which will be sadly and unfortunately familiar to many families and friends who's loved ones have fallen ill from this condition.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/
Our support groups are listed here https://www.encephalitis.info/online-support-meetings
Read more information about death from encephalitis on our website https://www.encephalitis.info/effects-of-encephalitis/death-from-encephalitis
If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ
Follow Encephalitis International
Facebook: https://www.facebook.com/encephalitisinternational/
X: https://twitter.com/encephalitis
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational/