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The Encephalitis Podcast is brought to you by Encephalitis International and covers everything to do surrounding inflammation of the brain. Interviews with neurologists, psychiatrists, survivors and in-depth looks at different aspects of encephalitis. For more information about encephalitis, visit www.encephalitis.info
Episodes
4 days ago
4 days ago
In this episode of the Encephalitis Podcast, Prav speaks with neurologist Dr. Aline Matos about the development of global training modules designed to help clinicians diagnose and treat encephalitis -especially in low-resource settings.
They explore why encephalitis is often missed or misdiagnosed, the life-changing consequences of delayed diagnosis, and how these practical modules empower clinicians to act even with limited tools.
Dr Matos says 'Encephalitis does not end when the acute phase ends. The long-term sequelae, cognitive behaviour, social are often invisible but deeply impactful. So improving and saving lives care is not only about saving lives, as we said earlier, it is about preserving lives.'
The global training modules can be viewed on the BMJ website here https://new-learning.bmj.com/collection/30000415
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
#EncephalitisAwareness #BrainDisorder #EncephalitisSociety
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Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Friday Mar 27, 2026
Friday Mar 27, 2026
What is MOG antibody-associated encephalitis, and how does it differ from other types of autoimmune brain inflammation?
In this episode of The Encephalitis Podcast, Prav speaks with Dr. Matteo Gastaldi, neurologist and Head of the Neuroimmunology Research Unit in Pavia, Italy. Together, they explore MOG antibody-associated disease (MOGAD), including how it presents in children and adults, symptoms to watch for, how it can mimic viral encephalitis, and current treatment approaches.
Dr. Gastaldi also discusses relapse risk, long-term treatment decisions, the challenges of antibody testing, and exciting developments in ongoing clinical trials. This episode offers hope and clarity for patients, families, and clinicians navigating this complex and evolving condition.
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
#EncephalitisAwareness #BrainDisorder #EncephalitisSociety
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Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Saturday Mar 14, 2026
Saturday Mar 14, 2026
The Encephalitis Podcast Ep 63
In this episode, Prav is joined by Dr. Freddie Byrne, clinical psychologist and Clinical Director of Living with ABI Limited.
Together they explore the realities of parenting after encephalitis and acquired brain injury (ABI), including changes in family roles, the impact on children’s well-being, trauma, and post-injury growth. Drawing on over a decade of experience, Dr. Byrne shares practical insights into supporting families, improving communication, and keeping children’s needs at the center of recovery.
An essential conversation for parents, families, and professionals affected by encephalitis and ABI.
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
-------------------------------------------------------------------------------------------------------------------------------
Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Thursday Feb 19, 2026
Thursday Feb 19, 2026
Encephalitis Podcast Ep 63
In this episode of The Encephalitis Podcast, Prav is joined by leading neurologist Dr Nicholas Davies to introduce F.L.A.M.E.S., a new life-saving acronym designed to help the public and healthcare professionals recognise the urgent symptoms of encephalitis.
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
#EncephalitisAwareness #BrainDisorder #EncephalitisSociety
-------------------------------------------------------------------------------------------
Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Friday Jan 30, 2026
Friday Jan 30, 2026
Encephalitis Podcast Ep 62
In this episode of the Encephalitis Podcast, Prav is joined by award-winning screenwriter and director Scott Z. Burns to discuss the depiction of encephalitis in films and explore the science, humanity, and lasting impact of the 2011 film Contagion. Inspired by real-world viruses such as Nipah and SARS, the film gained renewed relevance during the COVID-19 pandemic for its portrayal of a global outbreak with neurological consequences.
Nipah virus factsheet - https://www.encephalitis.info/types-of-encephalitis/infectious-encephalitis/nipah-virus-infection/
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
#EncephalitisAwareness #BrainDisorder #EncephalitisSociety
------------------------------------------------------------------------------------------
Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Wednesday Jan 21, 2026
Wednesday Jan 21, 2026
In this powerful and emotive podcast episode Denis shares his journey of living with viral encephalitis from his life as an aeronautical engineer through the sudden onset of illness, hospitalisation, and a long, complex recovery. He discusses memory loss, intense emotions, vivid and distressing 'encephalitis dreams'.
Denis also explains the coping strategies, psychological support, and practical techniques that helped him regain stability, including working with a neuropsychologist and learning effective distraction tools. His story offers honesty, hope, and valuable insight for anyone affected by encephalitis or supporting a loved one through recovery.
#ViralEncephalitis #EncephalitisAwareness #NeuroSymptoms #LifeAfterEncephalitis #EncephalitisSupport #UnderstandingEncephalitis #BrainHealthTips
Wednesday Nov 26, 2025
Wednesday Nov 26, 2025
The Encephalitis Podcast Ep 60
This podcast episode is about sleep and encephalitis. Sleep difficulties can be a symptom of encephalitis as well as a potentially long-term after-effect.
Prav is joined by Dr. David Lee. Dr Lee is a chartered psychologist and chartered scientist who has been researching sleep and the psycho-behavioral treatment of insomnia for the last 20 years. He holds memberships with the World Sleep Society, the British Sleep Society, the Institute of Occupational Safety and Health, the British Association of Brain Injury Case Managers, the Vocational Rehabilitation Association, and the British Psychological Society, where he also holds an associate fellowship.
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
------------------------------------------------------------------------------------------
Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Wednesday Oct 29, 2025
Wednesday Oct 29, 2025
In this episode, Prav talks to Wady a patient advocate, music educator, singer-songwriter and survivor of anti-NMDA receptor encephalitis.
Here is a link to Wady's music https://youtu.be/btoaGoXLi1k
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
------------------------------------------------------------------------------------------------------------------------------
Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Wednesday Oct 15, 2025
Wednesday Oct 15, 2025
Encephalitis Podcast Episode 58
In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions.
They discuss neurological physiotherapy and rehabilitation including the specific neurological challenges that encephalitis survivors face.
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
------------------------------------------------------------------------------------------------------
Follow Encephalitis International:
📢 Facebook: https://www.facebook.com/EncephalitisInternational
📢 Instagram: https://www.instagram.com/encephalitisinternational
📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational
Wednesday Sep 17, 2025
Wednesday Sep 17, 2025
In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits her life to blood donor advocacy.
Kate founded Milkshakes for Marleigh after her daughter was diagnosed with seronegative paediatric autoimmune encephalitis and relied on blood donors for her treatment.
You can find out more about her work on her website - https://milkshakesformarleigh.org
-------------------------------------------------------------------------------------------
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
-------------------------------------------------------------------------------------------
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational