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The Encephalitis Podcast is brought to you by Encephalitis International and covers everything to do surrounding inflammation of the brain. Interviews with neurologists, psychiatrists, survivors and in-depth looks at different aspects of encephalitis. For more information about encephalitis, visit www.encephalitis.info
Episodes
4 days ago
4 days ago
In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International.
Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Wednesday Jun 25, 2025
Wednesday Jun 25, 2025
It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?'
Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford, and adjunct professor at the University of Southern Denmark.
He was part of the team that discovered LGI1 and CASPR2 antibodies and has cared for many patients with LGI1, CASPR2 NMDA, and other forms of autoimmune encephalitis.
Professor Irani is one of the world's most experienced clinicians in this area and has published over 200 scientific papers about autoimmune neurological diseases.
He's also a member of Encephalitis International's Scientific Advisory Panel, providing expert professional guidance which informs our research strategy, information, resources and guidance.
Find out more about autoimmune encephalitis here - https://www.encephalitis.info/types-of-encephalitis/autoimmune-encephalitis/
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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
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Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Wednesday May 28, 2025
Wednesday May 28, 2025
In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Wednesday May 14, 2025
Wednesday May 14, 2025
In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and Surgeons in Glasgow, where she qualified with with distinction and was awarded the Cameron Lockie Prize for Academic Excellence. Katy was previously chairwoman of the British Global Travel Health Association. And her career has taken her overseas with Médecins sans frontières following qualifying with distinction from the London School of Hygiene and Tropical Medicine. Katy is also Director of Riva Training Limited, an immunisation and travel health specialist training company, teaching for the Ministry of Defence and the NHS or the National Health Service.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Sunday Apr 27, 2025
Sunday Apr 27, 2025
In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Tuesday Apr 22, 2025
Tuesday Apr 22, 2025
In this special Legacy episode of the Encephalitis Podcast, Prav talks to our lived experience and community member Wunmi. Wunmi had encephalitis in 2017. Here, she shares her story and talks about legacies and leaving a gift in her will.
To learn more about wills or leaving a legacy gift to Encephalitis International visit: https://www.encephalitis.info/gift-in-will/.
This page also contains information about how UK residents can write their will for free, with our partners at Farewill. https://www.encephalitis.info/news/the-what-why-when-and-where-of-will-writing/
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Wednesday Mar 19, 2025
Wednesday Mar 19, 2025
In this episode, Prav - Senior Medical Writer for Encephalitis International - talks to Dr Stacy Clardy about clinical trials to to find out more about this important aspect of developing treatments for encephalitis. Doctor Clardy is both clinical and research faculty in the Division of Neuroimmunology and Autoimmune Neurology within the Department of Neurology at the University of Utah and the Salt Lake City Veterans Affairs Hospital. Her clinical specialisation and research focus is in the field of autoimmune neurology. Dr Clardy is the Principal Investigator, PI of the ExTINGUISH trial, a randomised clinical trial for NMDA receptor encephalitis at 37 sites, including two European sites, with enrolment having begun in early 2022.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Wednesday Mar 12, 2025
Wednesday Mar 12, 2025
In this episode Dr Ava Easton is joined by Dr Bhagteshwar Singh talking about improving the diagnosis and treatment of encephalitis in low to middle income countries. Dr Bhagteshwar Singh is back in the UK, having been based at Christian Medical College in Vallor, India, and Queen Elizabeth Central Hospital in Blantyre, Malawi in the last year. He's also a clinical research fellow and specialty registrar in infectious diseases and general internal medicine at the University of Liverpool in the UK. Please see below the links mentioned in the podcast.
https://www.liverpool.ac.uk/people/bhagteshwar-singh
https://braininfectionsglobal.tghn.org/the-programme/scientific-background/
https://braininfectionsglobal.tghn.org/resources/brain-infections-global-tools/
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Monday Mar 10, 2025
Monday Mar 10, 2025
In this episode, Emma Collins, Patient and Public Involvement Manager at Encephalitis International, talks to Dr Ava Easton, CEO at Encephalitis International and Chair of the PPI panel, about improving the work of patient and public involvement (PPI) driven by Encephalitis International in a study that looked at improving diagnosis and treatment of encephalitis in low-to-middle income countries.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational
Wednesday Mar 05, 2025
Wednesday Mar 05, 2025
In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane.
Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to complete vision loss from high intracranial pressure.
Diane discusses her lived experience, reintegration into education and the importance of empowerment when going through recovery after encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support
If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch
Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International:
Facebook: https://www.facebook.com/encephalitisinternational
LinkedIn: https://www.linkedin.com/company/encephalitisinternational
Instagram: https://www.instagram.com/encephalitisinternational