The Encephalitis Podcast

Encephalitis Podcast Ep 63 

In this episode of The Encephalitis Podcast, Prav is joined by leading neurologist Dr Nicholas Davies to introduce F.L.A.M.E.S., a new life-saving acronym designed to help the public and healthcare professionals recognise the urgent symptoms of encephalitis.

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
#EncephalitisAwareness #BrainDisorder #EncephalitisSociety
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Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational 

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

Encephalitis Podcast Ep 62

In this episode of the Encephalitis Podcast, Prav is joined by award-winning screenwriter and director Scott Z. Burns to discuss the depiction of encephalitis in films and explore the science, humanity, and lasting impact of the 2011 film Contagion. Inspired by real-world viruses such as Nipah and SARS, the film gained renewed relevance during the COVID-19 pandemic for its portrayal of a global outbreak with neurological consequences.

Nipah virus factsheet - https://www.encephalitis.info/types-of-encephalitis/infectious-encephalitis/nipah-virus-infection/

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
#EncephalitisAwareness #BrainDisorder #EncephalitisSociety
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Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational 

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

In this powerful and emotive podcast episode Denis shares his journey of living with viral encephalitis from his life as an aeronautical engineer through the sudden onset of illness, hospitalisation, and a long, complex recovery. He discusses memory loss, intense emotions, vivid and distressing 'encephalitis dreams'.

Denis also explains the coping strategies, psychological support, and practical techniques that helped him regain stability, including working with a neuropsychologist and learning effective distraction tools. His story offers honesty, hope, and valuable insight for anyone affected by encephalitis or supporting a loved one through recovery.

#ViralEncephalitis #EncephalitisAwareness #NeuroSymptoms #LifeAfterEncephalitis #EncephalitisSupport #UnderstandingEncephalitis #BrainHealthTips

The Encephalitis Podcast Ep 60

This podcast episode is about sleep and encephalitis. Sleep difficulties can be a symptom of encephalitis as well as a potentially long-term after-effect.
 
Prav is joined by Dr. David Lee. Dr Lee is a chartered psychologist and chartered scientist who has been researching sleep and the psycho-behavioral treatment of insomnia for the last 20 years. He holds memberships with the World Sleep Society, the British Sleep Society, the Institute of Occupational Safety and Health, the British Association of Brain Injury Case Managers, the Vocational Rehabilitation Association, and the British Psychological Society, where he also holds an associate fellowship.

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

------------------------------------------------------------------------------------------

Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational 

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

In this episode, Prav talks to Wady a patient advocate, music educator, singer-songwriter and survivor of anti-NMDA receptor encephalitis.

Here is a link to Wady's music https://youtu.be/btoaGoXLi1k

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

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Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational 

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

Encephalitis Podcast Episode 58

In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions.

They discuss neurological physiotherapy and rehabilitation including the specific neurological challenges that encephalitis survivors face.

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

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Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational 

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits her life to blood donor advocacy.

Kate founded Milkshakes for Marleigh after her daughter was diagnosed with seronegative paediatric autoimmune encephalitis and relied on blood donors for her treatment.

You can find out more about her work on her website - https://milkshakesformarleigh.org

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

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Follow Encephalitis International: 
Facebook: https://www.facebook.com/encephalitisinternational 
LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

 

In this episode, Prav talks to Dr Sophie Binks about genetics and DNA in relation to autoimmune encephalitis. Asking the question 'can genetics play a part in the prevalence of encephalitis?'

Sophie is a Clinical Lecturer and Honorary Neurology SpR at Nuffield Department of Clinical Neurosciences, University of Oxford. She is also on the Scientific Advisory Panel for Encephalitis International. 

Her research focuses on clinical and genetic aspects of autoimmune encephalitis. 

 

 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

 

Follow Encephalitis International: 
Facebook: https://www.facebook.com/encephalitisinternational 
LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles Yeats

In this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates.

Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support during times of isolation, and often significantly transformed after encephalitis.

Dr Yeates is a consultant clinical neuropsychologist with over 20 years of experience in neuro rehabilitation. He has worked in internationally renowned NHS services in the UK, that's National Health Services such as the Community Head Injury Service, Aylesbury and the Oliver Zangwill Centre, Cambridgeshire.

With an additional background in Chinese martial arts, Doctor Yeates applies these practises to address physical and psychological needs.

Currently, he partners with charities on web-based resources, chairs the Thames Valley UK acquired Brain Injury Form, and serves as an active academic at Oxford Brookes University's Centre of Movement, Occupational and Rehabilitation Services.

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

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Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International.

Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups.

 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

 

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational