The Encephalitis Podcast

In this episode of the Encephalitis Podcast, Dr Ava Easton is joined by author Sam Goodwin

Sam is a self-published crime writer from Leeds whose debut novel, Murder at Macbeth, was published just over two years ago. She has also collaborated on a new non-fiction book with some of her fellow writers called Indie Writing Wisdom which offers advice and insights on writing and self-publishing.

Indie Writing Wisdom is dedicated to her dad who sadly passed away as a result of encephalitis in 2017 with proceeds going to the Encephalitis Society.

In this episode, Sam discusses her dad, her writing experiences and shares her advice for aspiring authors - a topic which will really resonate with many of our listeners who are interested in sharing their experiences of encephalitis.

Indie Writing Wisdom is available from Amazon at https://amzn.to/3ytkeIp

Murder at Macbeth by Samatha Goodwin is available from Amazon at https://amzn.to/3DU9GmI

The Encephalitis Podcast is available on You Tube, Google Play, Spotify, Apply and Podbean.

For previous episodes, visit https://www.encephalitis.info/Listing/Category/our-podcasts

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

 

In this edition of the Encephalitis Podcast, Dr Ava Easton chats to Gagun Gahir, our Chair of Trustees, about why she became a Trustee, the difficulties that the Encephalitis Society faced during the pandemic, the new vision and mission of the Encephalitis Society and why they are so important to a charity such as ours. Finally, we put her on the spot with a few hard-hitting Christmas questions such as "what part of Christmas Dinner DOESN'T she like?" A great behind the scenes insight into the Encephalitis Society.

 

The Encephalitis Podcast is available on You Tube, Google Play, Spotify, Apply and Podbean. For previous episodes, visit https://www.encephalitis.info/Listing/Category/our-podcasts

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

 

Juliana Ortiz, a volunteer with the Encephalitis Society, shares her experiences and advice for people who have been affected by encephalitis.

Juliana, who is a Psychology and Neuroscience student at the University of Florida, was speaking during Encephalitis Information Week.

To read more about Juliana's story, visit https://www.encephalitis.info/julianas-story

For more information about Encephalitis Information Week, visit www.encephalitis.info/informationweek

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

 

In this edition of the Encephalitis Podcast for Encephalitis Information Week, Dr Ava Easton talks to James Pratt about clinical negligence and why it can be important to changing policy and practice among healthcare organisations. James talks about falling ill with encephalitis and his experiences of pursuing a medical negligence case and his relationship with his solicitor.

If you have a legal question around encephalitis, or want to download our Neuro-Legal handbook, visit https://www.encephalitis.info/legal-advice

For more information on Encephalitis Information Week, visit www.encephalitis.info/informationweek

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

 

Author Catherine Jessop joins Dr Ava Easton to talk about her brilliant new book Pulling Through: Help for Families Navigating Life-Changing Illness.

On Boxing Day 2016, Catherine's husband, Alan, had his first devastating seizure as a result of encephalitis, thrusting the Jessop family into an unknown world.

In her book, Catherine shares advice and inspiration on everything she has learned, with chapters clarifying medical terms and explaining tests and scans as well as explaining some of the financial and legal issues around illness.

Catherine also focuses on the emotional side of having a relative with a brain injury and how it affects the whole family, sharing her own thoughts on how to look after the mental health of both patient and carer and the power of nature, humour, music and optimism.

This is an excellent chat about an excellent book - enjoy! Pulling Through: Help for Families Navigating Life-Changing illness by Catherine Jessop is available from https://www.amazon.co.uk/Pulling-Through-Families-Navigating-Life-Changing/dp/1787753727

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

 

Rebecca Adlington, the four-time Olympic medallist and Ambassador of the Encephalitis Society, joins Dr Ava Easton for our latest episode of the Encephalitis Podcast.

Motherhood, Pandemics and the Olympics delves into Rebecca's outstanding swimming career, the new addition to her family and what life was like for her during the COVID-19 lockdowns.

She also talks about the Tokyo Olympics and what Team GM swimmers we should be looking out for!

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

 

This edition of the Encephalitis Podcast looks at fatigue which is one of the more common outcomes for people who are recovering from encephalitis and other neurological illnesses or trauma which cause injury to the brain.

Dr Ava Easton, our Chief Executive, talks to Donna Malley, an an Occupational Therapy Clinical Specialist at the Oliver Zangwill Centre.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

For more information about the Oliver Zangwill Centre, visit https://www.cambscommunityservices.nhs.uk/what-we-do/all-other-services/oliver-zangwill-centre-(ozc)/ 

 

Dr Ava Easton talks to Professor Jon Stone and Dr Tim Nicholson about Functional Neurological Disorder (FND).

Professor Stone is Professor of Neurology at the University of Edinburgh, and Dr Nicholson, is Honorary Consultant Neuropsychiatrist at Institute of Psychiatry, Psychology & Neuroscience (IoPPN), Kings College London.

We cover everything from presentations of FND, encephalitis and FND, advice for someone who believes they have the condition, advice for medical professionals, and overcoming stigma associated with FND and much more.

We hope you enjoy this informative discussion with Tim and Jon!

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

 

In this edition of the Encephalitis Podcast, Dr Ava Easton is joined by director and cinematographer Mike Day.

In 2011, as he was finishing his first film, The Guga Hunters of Ness, Mike became ill with encephalitis. He lost the ability to walk and was even told that he would not be able to work again.

However, during his recovery, Mike threw himself into his next film, The Islands and the Whales, a true labour of love which was filmed over five years in the Faroe Islands.

This is a great interview with Mike which touches on his illness and recovery, his work as a documentary film maker and what lies in store for him in the coming year.

Our latest podcast - Lockdowns, Art, Cooking and Sin! - features our amazing Ambassador Mathew Bose.

Mathew is an actor, an artist, nutritionist, life coach and an excellent cook! He has also been an Ambassador with the Encephalitis Society for around 14 years – his arrival and support was one of the catalysts for us really beginning to kick on as a global organisation. As always, our podcast is hosted by Dr Ava Easton, our Chief Executive.

We enjoyed this podcast - and we hope you do too!